A Big Thank You to Captain Ace from our family

[lundrs]

On Monday, September 10th, 2007, my family will be hosting the 1st annual MAGIC Foundation Golf Outing in honor of Devan Hanks. The event will be held at the Normanside Country Club in Delmar, NY. We will be raising funds for the MAGIC foundation, a not for profit organization that raises funds for research for children and adults living with a genetic growth disorder.

Devan, my granddaughter, is the 2 year old daughter of Becky (Sievert) Hanks and Bobby Hanks. Becky and Bobby both grew up in Bethlehem and currently reside in Glenmont. Their daughter, Devan, has a rare genetic growth disorder known as Russell Silver Syndrome (RSS). RSS is a disorder present at birth that involves poor growth, low birth weight, short stature, lack of appetite, hypoglycemia (low blood sugar), and differences in the size of the two sides of the body. RSS occurs in approximately 1/75,000 births. It is one of 200 types of dwarfisms and one of five types of primordial dwarfisms. It is one of the few forms that are considered treatable.

It was because of Devan’s Russell Silver Syndrome that led Becky and Bobby to the MAGIC Foundation. The MAGIC Foundation is a national organization created to provide support services for the families afflicted with a wide variety of chronic and/or critical disorders, syndromes and diseases that affect a child’s growth. Some of the diagnoses are quite common while others are very rare. MAGIC continues and develops through membership fees, corporate sponsorship, private donation and fundraising .The money raised will go into a fund in Devan’s name to offset the cost of her trip to an annual convention in Chicago to meet with the top specialists about advances in treatment of Russell Silver Syndrome. The convention also acts as a networking tool for her parents. Any money raised beyond the cost of the trip will be used as a scholarship for another family affected by a growth disorder, to attend the convention.

The reason I am posting this is to, first, thank Jimmy Samia “ Captain Aceâ€Â